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"My boy needs dental surgery under general anesthetic- wisdom please!"

Compiled by LLM. Updated 3/9/03

Do you have anything to add to this page? Email Leilah with your response.

Question:

"My little boy (just turned 3) is going to the hospital for dental surgery- he's the only one out of eight fully-breastfed children with 'bad' teeth. (His top four teeth need to be removed, and he needs numerous caps and fillings). He needs a general anesthetic- and I feel very overwhelmed with the thoughts of how that day would go. If anyone has any good advice on how to get such a little kid through such a big experience, I would value it greatly.

"Also: I have heard of an alternative to general anesthetic- chloral hydrate- this would put him into a near-sleep state, and possibly enable him to tolerate this procedure in a regular dental office. Does anyone have any experience with this drug?- or children's extensive dental work in general?" -site editor LLM

Responses:

By Leilah, after the fact

3/9/03

"Well, now it's all done- it's been a week and a half since the procedure was completed (all went quite well), and I'll share what I learned about how it all went.

1- Bringing along his favorite teddy helped A LOT.

2. SUPPORT PEOPLE: Having extra support: for him- bringing his big sister, his most helpful friend; for me- my midwife and friend Gloria Lemay.

3. Leaving the baby at home with her father was a good idea- I was able to focus all my attention on Sean.

4. I was with him at ALL TIMES- when he was conscious, anyway. It felt horrible, especially as they were putting him under; I knew it felt to him that I was betraying him. The memory is an awful one- how he screamed and struggled to get away (from me!)- it was one of the most wretched things I have ever been through as a mother. But, I know it was best- things can't be all rosy and sunshine all the time, sometimes scary things need to be done, and a firm but loving hand is needed. Our kids don't have to be our "buddies" all the time.

"As he was recovering, I was there- no one called me, but I was sure I was there anyway, which was a bit of a struggle- to overcome my deeply-ingrained habit of being a "good girl"- someone who obeys the rules. But with the help of my support person, Gloria Lemay, I was able to do what I knew was right- be with my little boy when he needed me most, whether they wanted me to or not. So in I went (politely) to the recovery room, where I was the first person he saw upon waking, and then I laid with him on the bed. He did not leave my arms for the rest of the short hospital stay.

"If I could go back and do anything different, it would have been to hold my ground better when confronted with the anesthetist, who maintained that my son wouldn't 'remember anything' and proceeded to treat him like a nonentity. I wish I could have slowed things down a bit- and held him in my arms as he was put under with the gas masks (instead of trying to soothe him as they held him (too firmly!!!) down in that ghastly OR. Yes- I would slow things down, and insist I hold him until he was 'out'...

"Another thing I wish I could go back and fix- I wish I would have brought a long a really nice wrapped present for him, a special treat 'from the dentist'. I was thinking of doing this but from some reason never did. It would have made his experience better, I understand that now.

"But in all I did ok, and I'm deeply grateful for all the kind words, support and wisdom I have received in this." -Leilah

* * * * *

"As I was pondering your question about how to handle the dental surgery of your 3-year-old son, I kept coming back to the same questions:

1) What benefit would there be to remove teeth from a child before his permanent teeth came in?

2) If you don't trust obstetricians to know what is best for your family, why would you trust dentists to know what is best for their teeth?

3) Would this child still require dental work if he followed the nutritional findings of Weston A. Price DDS?

"You'll have to answer these questions yourself, but personally I no longer place all my trust in doctors (or other "experts") to make health decisions for my family or myself. I feel that they may know how to perform surgery or use drugs and radiation, but just as it is with birth they cannot know what is best for all of their patients. I feel that it is up to me to learn all I can in order to make an informed decision (which usually involves staying far away from doctors of any kind), and to take charge of my own health. I guess you could say that I now take the unassisted birth philosophy to include all aspects of health care.

"I have been (informally but voraciously) studying nutrition for the past 2-1/2 years. Weston A. Price DDS was a dentist who in the 1920's and 1930's traveled around the world studying the health and teeth of primitive people. He looked at their teeth when they were on their native diets, and then as they came into contact with western culture. What he found was an amazing difference in their health, their teeth and their resistance to disease after they were introduced to civilized foods.

"He also found people who abandoned their traditional diets and developed cavities, and then returned to a native diet could heal those cavities without any dental work, just on the basis of good food. The body knows how to birth, and the body knows how to heal when it is given the nutrients it needs.

"For more information on the work of Weston Price I suggest:

  • "Nutrition and Physical Degeneration" by Weston A. Price DDS (includes amazing photographs)
  • "Nourishing Traditions" by Sally Fallon (this is a combination recipe book and wonderful resource on nutrition)
  • www.westonaprice.org
  • Wise Traditions (magazine)

Good luck and good health." -Lisa Bianco-Davis

* * * * *

"My daughter is also going to be 3 in February and will be having the same oral surgery soon. This will be the sixth time that she has needed anesthesia.

"Chloral Hydrate can be good for sedation when a painless procedure is being done, like a medical test that requires the child to be still, but it doesn't always work with every child. With teeth extractions I am having it done at the hospital's ambulatory surgical unit and this way I know that she will be safe and will not remember the pain of the procedure. With all of her anesthesias the doctor has allowed me to go into the OR with her and sing to her while the mask is being put on her and until she is asleep. The anesthesia has a grape or bubble gum smell for the children and the worst part is the mask over the face. It might help to ask the doctor if you can get an OR outfit to show your child how you will have to dress to go with him and how the doctors and nurses will be dressed.

"Also, our children take their cues from us. Try to make it fun. Sing and dance, bring a favorite comfort toy and believe me you will cry as soon as your child is asleep. But, don't let anyone tell you that you shouldn't be crying. Let it out, because it is scary to see a child sedated.

"When the child is taken to recovery, they are usually very quick to get parents and you can usually hold your child pretty quickly. Don't be alarmed if your child is crying and then going back to sleep several times. Also, it can make a child very crabby for a good hour. Be sure to bring your child's favorite drinking cup and juice. I also take a sealed bottle of water to dilute the juice. Sometime a child can vomit soon after drinking, but try bringing a fun straw so that your child sips slowly.

"Good luck with everything!" -Peace and love, Gloria

* * * * *

"My son was 4 1/2 when I first took him to the dentist. We brush teeth regularly and generally eat very few sweets. I was shocked to learn that he had 3 very serious cavities- 2 of them almost to the root! I was told they were going to have to do a Pulpectomy (basically digging down to the root and applying something to kill the bacteria and then placing a filling over that). He said this was about the same as doing a root canal. He explained our options and we decided to have them use the gas (hydrochloride I think) in the dentist office.

"When Keaton got there,they had him choose a little face mask that would deliver the gas- he had 3 'flavors' to choose from (bubble gum, grape, or cherry). They started to give him the gas and he relaxed quite a bit (he wasn't that nervous to begin with since he had only been to the dentist once and it was a pleasant experience). I sat with him while they worked and he was awake (watching a children's video), but felt NO pain. He was out of it, but the minute they took the mask off, he was totally normal and had no real memory of any of it. Hope this helps!"

Nicole- BCCE, CD (DONA)
Mom to Keaton 6, Griffin 4 and Landon 6 months

* * * * *

"I had a similar thing with my son who is super hyperactive. I didn't take him to the dentist till 3 because he is near impossible at times. He needed extensive fillings, etc. because he was difficult to pin down- took my husband and I both to brush his teeth. We did it regularly, but it was difficult and the cavities were the result.

"I was petrified of his reaction to the dentist (he hates Dr's in general and fears white coats due to some previous health problems - which didn't end up existing ... long story). Anyway, they gave him gross medicine to drink, and that calms them first. He then threw up after a while (it has that side-effect) and then after about an hour they gave him gas and did all the work in the chair. They used a papoose to keep him still, I insisted on staying with him (which was good for both of us) and he was in far away land. Also, when the lady dentist gave him the shot, she keep the needle hidden (she had numbed him first with gel) and she snuck it up towards his mouth (he didn't even notice the shot). It went WAY better than I thought it would, and he was even okay with going back to her for the next round of fillings. He was dopey that afternoon, but recovered perfectly.

"I generally feel better about the gas and pre-med than about full anesthesia." -Leigh

* * * * *

"Well I have a bit of experience with Chlorohydrate (Noctec). This drug is used as a night time sedative. I have had it used for my kids (age 5 and 6) for dental work (both boys needed 4 and 5 fillings). It was great as they slept through the procedure. I highly recommend that if you go this route that you ask about resuscitation abilities that he has.

"That said......

"Personally if I had the choice for extracts I would definitely go with general anesthesia. The work involved in the extract is quick, but for the three year old... I would rather he be in hospital with me at his side through the whole thing. Hold him while the anesthetic is administered. And be right with him as the procedure is over. He will waken with a sore mouth, which you can give rescue remedy and arnica for immediately. A bit of Tylenol and you will have a little boy at the end of the day sticking his tongue out through his empty tooth spaces and having a blast. (I believe).

"I have general anesthetic as a child (6 years old) and they are very good with kids and understand that this can be a traumatic experience.

"In my opinion.... achieving the 'near sleep' and comfort of such is more difficult than under going the general with the right resuscitation equipment at hand with a trained anesthesiologist.

"So there ya go. Anecdotal at best. But I think you can make the experience less fearful with the hospital choice. If you make it as interesting as possible, they won't be as scared.

"Remember...he has no idea about obstetrics and hospitals and the fear mongering that happens there. Kids' hospitals are very compassionate since the days I was there."

Patricia Blomme, RN
(burned as a child at the age of six and knows all about general anesthesia and kids hospitals)

* * * * *

"You asked about the alternative, chloral hydrate, to sedate him during the procedure. I can tell you my experience of it, but it is with a baby (10 weeks old), not a small child. When Julian required surgery on his skull, they needed to do a CAT scan and he HAD to lie completely still for this procedure, so he was sedated with Chloral hydrate. I was allowed to administer it to him myself, the nurses loaded it into a medicine syringe and I slowly squeezed it into his mouth. It seems to be pretty yucky tasting stuff, but slowly, I got it all into him. It definitely made him very sleepy and very limp.

"I don't know anything about the side effects, but Julian is 20 now, he made it through all of the difficult procedures, drugs and surgery relatively unscathed (I think, can't really know for sure). I'm sure you are searching the Internet for information on this drug and also your physician or anesthetist should be asked.

"Regarding Sean's teeth, I don't know the extent of the decay, but my daughter Ilaria has had a couple of problems with her first molars on the upper gum. One of them was so bad and abscessed really badly, I panicked and took her in to the dentist and he did a baby root canal right there on the spot because he filled me with all kind of fear about the infection. Sure enough, a year later, the first molar abscessed on the other side. What I did was go out and buy a water pik, it's a cleaning tool that shoots jets of water. Ilaria had to clean that spot 3 times a day and I put a little antibacterial mouth wash in it, and her abscess cleared up just fine. I have read some bad things about root canals locking infection deep into tissues, so I felt it best to leave the hole in the tooth there to drain any bacteria, but just keep it VERY clean. She still cleans with the water pik 2-3 times a day. They are not too expensive of an apparatus, about $30-40, but everyone in the family likes it and uses it now. Way better than flossing. It feels really good to massage your teeth and gums with water." -Love, Maryanne

* * * * *

"My son had extensive decay by the time he was three. He needed three pulpotomies, which are partial root canals, a couple of fillings, and his dentist thought we should cap his front teeth, since they were grey with decay. The dentist suggested we consult with the dental surgeon to see about having it all done under general anesthesia, a prospect that made me nervous.

"On the advice of the dental surgeon, we chose to leave his front teeth alone, as they would fall out in a couple of years anyway. He also said he thought Jacob could sit for the pulpotomies as long as the dentist was a good, fast pediatric dentist (and he said our dentist was). That turned out to be true. I held him for the first one, literally sitting in the chair with him on my lap. He asked me in advance if it would hurt. Not wanting to lie, I said yes, but that it wouldn't be more than he could bear and that I would be with him every second. (I wept through the whole first time.) He watched a Disney video during it (we have no television at home, so this was very exciting for him). The dentist was done with the partial root canal in less than 30 minutes. He got some toys, and she suggested I wait a while to bring him back in order to let the memory fade. We went back about six weeks later and did the next one and then another one with a filling or two at each visit.

"He could indeed sit for it, and I learned a great deal about parenting. It really reminded me that my job as a mother is not to prevent my children from (necessary) pain, but rather to help them through it. Good luck." -Vicki

* * * * *

"My daughter has had 4 surgeries- and it was definitely easier when she was younger- she did not know to be afraid so the whole thing seemed to go much better. Her last surgery was when she was 8 and her fear was the worst part of it. Are you still nursing? If so, that will be a big comfort both before and afterwards. How long will they allow you to be with him?- through the surgery?- until the general takes effect? When I saw my daughter under general it was a very unnerving experience- to see her laying so perfectly still- I still have visions of that sometimes and just praise God that she's okay now.

"If it works out that you can skip seeing him under general- I would recommend it. But, of course, if your son needs you to stay with him then just be prepared- it can be very creepy. Don't want to add to your anxiety, but wanted to warn you so you know what to expect. Your son will most likely come through the surgery just fine- when they're so young they seem to recover incredibly fast and I have not noticed that it affects them emotionally in the long run. That's a relief anyway! God bless!" -Vyckie

* * * * *

"Leilah, I know how you feel, two weeks ago we had scheduled an adenoidectomy for my 4 yrs old, but the night before we were both so stressed and confused because we weren't sure it was absolutely necessary so we decided to postpone it for now... Indeed the idea of having a child put to sleep is frightening. But I am sure your son will be fine because he is going to have people all over the world praying and sending good vibes! good luck,." -Ibone

* * * * *

"I've been through dental surgery twice. It is terrifying even for an adult. The best thing you can do is to keep him comfortable afterwards. Whatever he wants to eat when he comes to, let him. Best things are stuff like popsicles, jello, sherbert, chicken soup broth...

"He will be very dopey on and off for a week or more. The first two days, have your eldest children sit with him as much as possible or watch the little ones to help you take care of him. He might toss his cookies on the way home from the hospital if you get to take him home that day.

"Keep him warm, comfortable, and as pain free as you can. Give him lots of love. And give him a hug from each of us." -Mimick

* * * * *

"Do you use homeopathics? If you do, make sure he gets arnica post op as often as he'll take it, and of course Bach's Rescue Remedy before and after and take it yourself too. My daughter was badly burned her hand and we had ambulance, ER, burns unit trip then daily visit to the burns unit for two weeks for dressings (not a mark on her now) and we found that by being calm and trusting that that vibe seemed to really rub off on her. She took deep breaths for the nurses when they changed her dressings. We didn't lie about the pain, just made the procedures very matter of fact and that reassured her a lot. Told her things were going to hurt but that we'd be with her and that she could cry and say 'Ow ow ow'. By the way she's also been to the dentist and had two fillings in the chair- at 2 years of age, applied same principles. I hope this goes really well, let us know." -Kris in Australia, mom to Dara and Kell.

* * * * *

"I would use rescue remedy before the surgery and make sure that you use arnica, in an acute protocol, for healing and pain management after the surgery." -Pam

* * * * *

"Praying for you and your baby. :0) He will get through it much better than you will I am sure.

"I know what you are going through as my kids have had some strange things happen. My oldest had a migraine last spring that caused complete amnesia for hours. She has since been diagnosed with rolandic seizures which are pretty mild and usually outgrown. My 4 year-old daughter has a 'sunken chest' and will have to have surgery in a couple of years, actually at least 2, one to place a 'bar' of some sort and another to remove it." -Michelle C.

* * * * *

"My firstborn had some deep cavities, and had a crown done and some fillings under general anesthesia, when she was about 3 (and I was pregnant with my second baby). I know she and I met with the anesthesiologist at least the day before, and that I also met separately with the anesthesiologist, and if I remember correctly, we three walked down at least to the hallway. I wanted to find out exactly what anesthesia they were going to use, and lots of other things. The dentist, a great guy who acts very respectfully toward kids, had explained to her basically what would happen. I had asked the anesth. if I could stay with her (ie, be in the o.r.) the whole time. He explained that I could, if I really wanted, but that 'putting to sleep' is really 'putting in a coma', and that most parents find this very disturbing to see, and that the child has no awareness if you are there or not. I opted to stay in the waiting room.

"Riva, my daughter, was not thrilled about going the last 30 feet down the hall with the nurse (and not with me, as they didn't let ungowned etc. people past that point in the hall), but as soon as she saw the room itself she was fascinated by all the equipment. The one thing no one thought to tell her about was that 'everyone' would be wearing masks, and she said later that she found that scary. There were 2 anesth's - one to administer the anesthesia and one to monitor vital signs. One of these was great. He talked with her, explained everything, and also lifted his mask briefly to show her his 'real face' underneath, which helped her a lot.

"Riva, a pretty attached child, did absolutely fine. She remembers this event in her life, but without trauma. During the process, the dentist called the receptionist in the waiting room several times to give progress reports, and that also helped me.

"So my suggestions would be if at all possible to take your child to visit just where he/she will be going, remind her of the people she knows who will also be there with him/her (the dentist? the dentist's assistant?). Our dentist talked with her about how they would be making her teeth 'happy', so she would have 'happy teeth' afterward. Riva had had several cavities drilled and filled which had not been fun at all, so I think the idea of 'happy teeth' that would not need that was very positive for her.

"I would highly recommend going over pretty much what will happen- the sequence of events. This should include getting up in the morning of the day without getting food or drink- I worked out with Riva that I would wake her just in time to carry her out to the care and drive to the clinic, so there was a minimum of time of her feeling thirsty and hungry. I reminded her that I would be right there in the building all the time. Talk about recovery- that she/he will be in a special room, that it might take some time of feeling woozy and foggy waking up, but that he/she will get to have something special (a popsicle? ask about what they give kids in the recovery room), though probably won't feel like much food till later in the day, which gives your child something positive, even exciting, to focus on.

"Maybe there is something special (a toy? a food? a special time with Mom or Dad or even an older sibling?) to plan on for at home later (though they will probably feel like sleeping a good part of the day), again, kind of a reward or special attention to offset the anxiety/discomfort. (If you are pretty strict about healthy food, TV, etc., this may be one time to make a little exception...).

"Anyway, this is how it went for us. Knowing as much as possible about what would happen, what to expect, helped me as much as it helped her! Hope this helps, and I feel confident that all will go well! I will be thinking of you!

"PS, Along with this, the dentist noted that Riva's molars had deep 'pits' that would be very hard to keep free of food and where it was likely that the enamel was thin. He said some teeth are just made that way, and he recommended putting on a polymer coating even on her 'baby teeth'. That is what we did, and it ended the problems of cavities in her molars. When her adult molars came in, we had coatings put on those also, and she has never had a cavity since then." -Susan

* * * * *

"I had a five year old go through the same thing last summer. Rescue Remedy and Arnica made it easier." -Alison

* * * * *

"Leilah, Piece of cake!!! The little ones are very resilient to the general and to surgery. Adults have the harder time. You will be surprised how well the little one will do. It is much harder and stressful for Mom and dad than the child.

"My son, who was born with several heart defects has had numerous surgeries including open heart. He did very well. I always put him on colloidal silver before and after surgery. I also put him on liquid chlorophyll (to build up his Hg) before as well. We always ate real good, lots of nutritious veggies so his diet was/is awesome. I have him on SuperGreens now at age 13 (Sunday was his bd) and his little heart is functioning best it can right now. We will be thinking of you and your family, and relax, he will be fine!"

Jill Peck-Colin, CPM
Las Vegas, NV

* * * * *

"My son was tested numerous times at two different hospitals to diagnose his epilepsy right after he turned 3, anesthetized, put to sleep, etc. My suggestions:

  • Have him take any "lovies" he likes- teddy bears, security blankets, whatever.
  • *Make the medpros wait* while they explain exactly what they're going to do next to you and then you explain it to him in language he understands before allowing them to do anything. Don't trust that they will tell him no matter how many times anyone assures you that they will. Don't let anyone rush him or you.
  • Talk it over with him afterward.
  • Kids this age may want to deny that they experienced anything but talk about what Teddy Bear or someone else experienced- putting it off onto the other. Go along with this. It's less emotionally painful for him.

Also, when I had my wisdom teeth extracted under GA, I was in severe but dull pain for a day or two afterward." -Annette

* * * * *

"Is he still nursing? That would be a great comfort to him. Be sure to tell the dentist that you want to be there before he wakes up, so yours will be the first face he sees when he does awaken. I know that was helpful for me when I had my wisdom teeth cut out. My mom was right there when I woke up. I wasn't as young as Sean, but I was a young kid. Juice pops are good too :)" -Amy Edwards

* * * * *

"Wow- my heart goes out to you. I have a long story, but the short of it is no one was with me as I came to from the GA. It would have made all the difference in the world if one of my loved ones was present to help 'call me back' into my body. I never really came back from the GA as a result. So, I would encourage you to hold his hand as he is gone-under the GA. This will help him remain 'grounded' here. You will be holding his place here, as his spirit, in many ways, is traveling to other levels. Hold his hand and call him back, welcome him back into his body, into this world as he returns from the anesthesia.

"Just what I learned from experience, and what would have shifted my entire experience. Much much love to you and your little boy." -Jaya

* * * * *

"Did you get a second opinion? My daughter was told her almost 3 yr old need massive dental work under general(baby bottle syndrome) he never had a bottle. Son in law is an RN and wanted to speak with the dentist as he was not able to go to the initial appointment. Doc would not talk with him.(only pedi dentist in the area) . They self paid for a second opinion with a regular dentist. Isaiah ended up with 3 cavities filled. They live in Iowa.

"I just heard on the news about that lady who had a mastectomy and the lab results were wrong she never had cancer. I told my husband to remind me to get a second opinion on all bad labs."

Judi Handmaiden
Midwifery Monmouth Oregon

* * * * *

"I think the first thing I would tell you is that, even though this IS truly a great big event for him, it's much more traumatic for you as his mother! The best advice I can give is to keep reminding yourself of that as you prepare him and go through this with him. He will certainly have his own feelings about it all, and it is really important to try to keep your own separate as you talk to him about it.

"My second suggestion would be for you to be prepared for a longer stay than you expect. My 13 year old daughter just underwent *6 hour* surgery (tonsils and adenoids) the day after Christmas, and we were surprised and a bit overwhelmed to have to deal with her being kept in the hospital for 2 nights for observation-her sleep apnea, which was the main reason for the surgery, was finally being noticed by the docs and they were concerned about how low her blood oxygen levels were dropping. It was probably better immediately after the surgery than it had been for years, but they had never seen it before and they were worried so we got to stay.

"So have him prepared for a stay-in case this isn't supposed to include one-and of course be prepared yourself to stay in case you need to.

"Finally, I think it's always best to tell children the truth about what's going to happen to them, but at their appropriate developmental levels. He should know that the doctor who he's met will be putting him to sleep and making some changes in his mouth, and when he wakes up he'll feel strange. You didn't say what exactly is being done, but I'm imagining that if it requires general, it involves some cutting, so they will have him on pain killers that will make him feel very sleepy, and probably he will only have very cold liquids to eat.

"Plan to have lots of books and videos (our ped unit has a vcr and tv in each child's room, and a huge stock of videos), and of course any comfort objects he uses. I would give him a special stuffed animal as a present afterwards- something really cuddly. If you think he's going to stay in hospital for a couple of days, you might also want to have a picture book of all the people who love him to look at. When my own kids were really young, I put pictures of special people in old tape cases and used colorful electrical tape to seal them closed. That way they had little stacking "blocks" with pictures in them and I never worried about them handling the pictures.

"Mostly, though, I'd say just stay really calm- make it an adventure- and always let him know you are confident that he will be ok. (even if you're not!) Many prayers that this goes easily for you both. " -Blessings, Fiora

* * * * *

"If at all possible for you to remain with him until he's asleep and for you to be brought to him as he's coming out of anesthesia, before he's really awake, try and get them to let you do this. Sometimes people coming out of anesthesia are disoriented and distraught, not fully come around, and the medical staff don't want the family to see this because people unfamiliar with anesthesia might not realize this is a fairly normal anesthesia reaction and would be upset by it.

"However even though I had requested this, after oral surgery as a teenager, my son remembers being upset and requesting the nurses GET ME and they would not do this for him. I would not have been frightened by his emotional state. They were protecting ME from nothing, and not respecting him by refusing his request. Although his memory of the day after surgery was only patchy, he did remember this- and also that I accidentally went through a red light bringing him home.

"Also- babies and children are notoriously undermedicated for pain. If you can find out what the doctor has ordered for him for pain after the surgery, then you can decide if he needs that much or can take less, but you'll be informed so the nurses can not ignore his pain if he needs more medication for it. Some nurses will ignore, unfortunately, or tell themselves he's doing fine when he's really hurting. I hope you are pleasantly surprised by good care and kind people. There are some good people out there, a lot of fairly medium ones, and the few jerks to beware of. I'll be thinking of you and Sean." -Val

* * * * *

"I'm with you Val. I did some nurse training and they do indeed teach that pain in childhood had no lasting consequences- well we both know how wrong that is. I was appalled when my eldest was given a GA, they forced the mask on her even though she was afraid, they wouldn't let me do it in my time and I specifically asked for them to get me so I was there when she came round and this didn't happen. When they sent for me she was already awake and terribly distressed. This caused me more pain than being there when she woke up and I couldn't calm Astrid down as she'd already been awake for god knows how long with nobody but strangers there.

"I don't say this to frighten you Leilah but to show you how important it is that you assert your rights and make sure they do things your way, you are his mother and as such know what is best, they will try and keep you apart because they don't know how important it is for you to stay together. A lot of nurses are very caring but they don't understand the bond between an attached child and it's mother. Nurses are often mothers who's children go into daycare at 6 months and label mothers like us neurotic and clingy, it's not their fault they just don't understand." -Lisa

* * * * *

"I remember my brother going to the hospital for surgery when he was just a bit older than Sean. One of the things that really seemed to work for him (and every child is different..,) was honesty. My mother reassured him calmly (she' sure wasn't calm inside!) about the basics of what to expect, trying to make it not sound too scary.

"Acknowledge that he will be scared and that it is ok, even mommy and daddy are a little scared but have confidence in the nurses and doctors who will be helping him.

"I think setting up a good relationship with the staff can help too. Try to show confidence in the staff in front of them...(most of the time) they'll take more pride in their 'work' and won't want to let you down. Does Sean have something special he can take to the hospital that might be a good conversation starter for the nurses and other staff... the good ones will recognize something such as a favorite toy and start a friendly ice-breaking conversation that can quickly relax a child. And something familiar can really be important in an environment where almost everyone is a stranger and even the rooms are so different from home.

"A favorite book or other calming activity to do during the wait between admission and the anesthesia. This might be good for mommy too. It's going to be difficult to not break down into a babbling fountain of tears I'm sure so something familiar will help you stay focused as well. And make sure you have something to work on while Sean is in surgery, you may not be able to do anything other than worry but at least you'll have an option.

"Would Sean be interested (I know, I know you've got enough to do to prepare for the surgery already!) in making cookies for 'all the new friends he will be making at the hospital'? Or he could color some pictures of the hospital, doctors, nurses, his bed at the hospital, (whatever other things you could associate with the stay).

"He might want to give one to his nurse, but it would also help him process some of the fear he is experiencing as well as let you know a bit of what is going through his mind since 3 year olds have lots of comprehension of what is going on but can't always verbalize their feelings.

A special gift. Maybe it could be opened after arriving at the hospital shortly before surgery and could be something to look forward to afterwards. Or you could save it to open after surgery as a distraction from the discomfort and disorientation. I hope something here will help. And just know that you will have friends all over the world praying for Sean, the surgeons, and you. He will be wrapped in love." -Donna

* * * * *

"My son who is now 9 (the youngest of 4 breastfed babies) also had many dental problems when he was younger. Three of his four 12 month molars abscessed and had to be removed and he had many, many fillings as well. He also had chronic ear infections from the time he was only a few months old. I have a wonderful dentist and he was able to develop a good relationship with my young son which included a lot of trust. He explains everything at the level the child can understand and shows what he is doing by letting the child hold a mirror. He was able to fill all the teeth over several visits without even using local anesthetic and removed the abscessed teeth with topical freezing rubbed on the area and then a local anesthetic. My son never complained of any pain during all of this work and actually still loves going to the dentist! I don't know how much of our success was related to Spencer's personality but I hope you have a dentist you trust totally and who will go the extra mile.

" It has been my experience that a lot of kids are sent for sedation or general anesthetic because you can get all the work done at once and it is easier for the dentist! My dentist's research might also be of interest to you. He is a prof. at the University of Toronto and has done extensive research into the health related problems of over exposure to fluoride whether through drinking water, toothpaste, and would you believe it, general anesthetic. I hope things go well for you and your son!" -Liz

* * * * *

"Big hugs to you guys!!!!! Having been through this sort of thing with Julian, I have a few words of advice for you. First of all, INSIST on going in with him to be there when they put him to sleep. It's a very scary experience for them... being taken away from mommy and daddy by a nurse in uniform and the process of being put to sleep is terrifying for a child. If you are with him, it lessens that a bit I think... at least they know that mama is there with them. THIS IS NOT ROUTINE PROCEDURE so you have to insist on it. I'd also insist on being there when he wakes up. They usually wake the child up before they call the parents and I think it's much better if yours is the last face they see going under and the first they see when they wake up.

"Also, I don't know if you've ever been through any type of surgery with any of your children, if you have then you already know this... but be prepared for them to look awful upon waking up. I didn't even recognize Julian when I walked into the recovery room... I looked right at him and thought it was someone else's child and kept on looking. My prayers will be with you, I hope it's a relatively simple procedure and his recovery isn't too hard... I know that it's so hard with a little one that doesn't really know what's going on.

<<<< Also- babies and children are notoriously undermedicated for pain. >>>>

"I absolutely agree with this statement! When Julian was coming out of his surgery, he was obviously in pain... he was screaming hysterically and I was holding him as tight as I could, but he was arching his back and backing away from it (it was oral surgery, so he was throwing his head back). I had to beg the nurse to give him more demerol and she finally did. It was the single most traumatic event of my life, it makes me shiver and cry just thinking about it now. The most important thing is to make sure that your baby's rights as a human being (the right to be with his mama is the most important one) are respected." -Much love, Jessica

* * * * *

"I too had oral surgery when I was 12 or 13 and was put under general. It made things so much better when they had my mother there for me to wake up. I had actually had this little fear that I would react to the anesthesia and not came back out of it, but when I saw my mom I knew all was well (and here I was an older kid) I even asked the Dr to keep the blinds open so that (just in case) the trees and the blue sky would be the last thing I would see before going to sleep. (FYI- they removed my canine/eye teeth from the roof of my mouth where it looked like they were going to stay. I do not have my eye teeth, I spent 2-3 years in braces where all of my teeth up to the molars were all moved down towards the front.)

"What I didn't know was that coming out of it I would be loopy. The first thing I asked for was to see my teeth!! I had this strong emotional reaction to it and started bawling. 2 minutes later when I was up and walking I was laughing hysterically, all the way to the bathroom. Mom laughed and cried with me. I don't remember too much pain, I guess I had been given an adequate amount of pain meds before hand.

"Well such was one of the more 'medical' experiences of my life." -Jesse

* * * * *

"When my daughter Amber was 11 months (now 20 yrs) She was in getting severely blocked tearducts opened. She was great it was me that was a wreck, keep busy while Sean is away from you, go for lunch, walk around the grounds, take the baby to the park. Waiting is the hardest part, give him lots of hugs and kisses, you are probably doing that anyway. My thought are with you both." -Jamie

* * * * *

"First of all, I'm sorry to hear you and your son are in this situation. I think having someone there with you to help support you in this you will make a big, big difference.

"When one of my kiddies needed to go under general for a bronchoscope, and another to remove a cyst 2x, it was soooo hard. Partly hard due to the hospital setting and the fear that it invoked in me. Partly because of the procedure that was taking place and understanding the risks involved. Though I know each case is personal and each situation varies, I would offer this advice:

1. Meet the doctor and anesthesiologist before the procedure. How do you feel about them? Does your heart trust them? Ask them about their experience. Ask them about risks/benefits/alternatives re: this procedure. Even if you already know the risks/etc. it gives the Dr's the correct impression that you will be watching their every move (in a good way) and that you are an informed and educated consumer.

2. Walk your child into the OR. You can hold him as he goes under. You have that right, you just have to wear scrubs, etc. Let him look into your eyes as they put the mask over his face. You may see fear and terror in his eyes, but try to smile back w/ love and strength. (Then go into the waiting room and bawllll...)

3. Remember you are still in charge. Push to be with your son right away in the 'recovery' room. Find the right doctor/nurse who will advocate this right for you. This is a hard time for your child and to wake up alone in a strange place is scary. You might have to fight a bit on this one. I'll be thinking of you and understand a bit of your trepidation..." -Heather McCue

* * * * *

"Affirmations for Sean's operation:

To be said out loud in the operating room as the anesthetic is being administered.

  • Sean is a strong, competent child.
  • Sean's body is already starting to heal.
  • Everyone in this room is blessed to know Sean.
  • The love of God encircles and enfolds all the members of the operating Team.
  • Love, patience and making a difference are the gifts of this operation.

To be said by the parents:

  • I am safe and my children are safe when life seems out of control.
  • It is all right for me to trust others.
  • Others see the beauty and goodness of my precious children.
  • All things work together for good.
  • Everything turns out more divinely than I ever thought possible."

Love, Gloria Lemay

* * * * *

"Be sure to give him arnica 3 times the days before, during and after the surgery. It will help ease the trauma, etc." -Sheila

* * * * *

"I just recently took my daughter in for dental surgery too and went through many anxieties about it. One of the hardest parts was not nursing her 4 hours before going in to hospital. We got up very early that morning trying to keep her distracted. I had found out who were the anesthesiologists for that morning. The senior one was going to be in the room during the surgery. They do it every week and the Pediatric Intensive Care Unit was at this hospital. Just in case, but they reassured me there has not been complications from the general for a long time. She got through it fine. I was pretty worn out. I went in to the surgery room with her until she went under. Then waited and waited. She did fine. They ended up taking out her four front teeth. I was not expecting that and it floored me. The x-rays showed bacteria in the roots and they had to take them.

"She was pretty groggy for a while. She nursed. We had a quiet day at home. She slept quite awhile in the afternoon. Was pretty much herself the next day. Adapting pretty good to using her back teeth. They rebound pretty good. I think in some ways it is harder for the parent. I hope all goes well for you and your child."

Beverly Scow
Wise Women Gathering Place
Green Bay, WI

* * * * *

"In my opinion, you are faced with a very difficult decision regarding Sean's care. I had the same situation with my daughter Phoebe (19) when she was 3. She was the only one of my four children who required a huge amount of dental work- both decay and spacing problems. The recommendation was to put her under a general anesthetic and complete all the work. I was too scared of anesthesia accidents and of the possibility of the effect on her subconscious (who knows- I'm sure that traumatic dental work has an impact too). We tried the chlorohydrate and she hated it (I think we finally used chocolate milk with it, but I'm not sure) and finally, in talking to other mothers, I found a dentist who used laughing gas (Nitrous oxide). I don't know the risks of the gas but that's what worked for her. At first I was with her, holding her hand and reassuring her, and eventually she was fine with me just sitting beside her.

"We/she had a terrible experience at the Oakridge Pediatric Dental Group with a dentist who was the head of pediatric dentistry at UBC - it was a nightmare - the dentist promised both Phoebe and I that she would call me in if Phoebe wanted me but didn't and Phoebe was heartbroken- and then the dentist tried to charge me extra for 'difficult behaviour'- the place had all the modern trappings but they practiced unethically, as far as I'm concerned. Anyway, that was when they wanted to do the G/A route - I almost went for it but didn't and one of the reasons was their terrible manner/attitude.

"Anyway, Phoebe spent a lot of time in the dentist chair and the gas worked well. Maybe someone has info on the risks of using it and that would be good to know.

"It was a horrible experience to have to make decisions for my sweet little girl at such a tender trusting age and my heart ached for her. I keep wondering about the causes of her poor teeth like maybe my diet at the time?

"Phoebe has had othrodontic work (braces and appliances etc), crowns, root canals, and after all she has gone thru' - since she was three - SHE STILL DOESN'T TAKE GOOD CARE OF HER TEETH!!!!!! go figure, I told her she has to start paying now.

"I feel for you and anyone else in your position - it seems like there are no easy answers. I wish you and Sean all the best, whatever your decision." -Laurie Brant

* * * * *

"If he were my kid I would sure try the Chloral Hydrate first- it is an Oral Sedation, he is conscious and breathing, just RELAXED++++. And they do it in the dentist office- not the hospital!!!!! I think it is a good first move- if it doesn't work you can always schedule him for a GA. Nothing ventured nothing gained." -Cindy Milner, RN

* * * * *

"I recommend royal chamomile to help with the side effect of general anesthetic." -Vivian Lunny, aromatherapist

* * * * *

"Our 4 year old son had the same problem and he too had to have his teeth repaired, we were lucky that the dentist didn't decide to pull them. The pediatric dentist in our town provides an intramuscular injection of a drug that puts the kids out enough that they are mostly asleep during the procedure. Our son had crowns put on this 2 front teeth and caps put on the 2 teeth aside of those. He did great through the procedure which was done in the dentist's office. I guess that it can be difficult to find dentists who provide the intra-muscular injection in office as the malpractice insurance is high for that procedure. You might want to call around and see if there is a dental practice in your area that can do the procedure in office instead of the hospital. I too was a nervous wreck about having our son's teeth possible pulled. Good Luck!" -Jennie Grow

* * * * *

"I was faced with this same thing when my son was 3 also. I was really torn about it. He also has weak teeth and at his first dental appointment he had more that 6 cavities! The dentist tried to fill one but his tongue kept getting in the way even though he was a perfect angel in the chair. I decided to wait a while to see if he could handle doing it in the chair. Six months later or so he had matured that much and he did it without a problem." -Alison

* * * * *

"My daughter too had oral surgery a year or so ago (she was just two then and preverbal) and it was a very traumatic experience for her and us.

"For whatever reason (and it seems there could be a combination, from what I read and heard), Roslin developed 'nursing caries'. Her four upper middle front teeth and 2 upper molars developed cavities, and by the time she made it to the top of the hospital waiting list the enamel on her front teeth was literally falling off in chunks.

"Having her teeth repaired seemed the right thing to do, but the thought of a general anesthetic and surgery scared me terribly. I felt that my premature first daughter's death was ultimately attributable to too many hospital interventions, so I was quite reluctant to subject my second daughter to surgery and an anesthetic, which is not without risks (death among them, and I can tell you that after having one child die I didn't feel that 1 in 300,000 was the most comforting odd).

"Thankfully she lived, but I have to say that for a couple of hours immediately after the surgery she cried inconsolably, something which she had never done before. She was completely unreachable- none of her favourite songs or stories helped. Apparently this is common, but no one prepared us for this ahead of time and we (and obviously she) found it quite traumatic.

"I also had refused a pre-surgery sedative for her (thinking the fewer the number of drugs, the better), but if I chose to do it again I would give her the oral sedative. Restraining a fully conscious child while an anesthetic mask is held over her nose and mouth to sedate her for surgery is extremely traumatic for her and her parent.

"Furthermore, in a pre-operation interview with one of the anesthetists, it was confirmed (and he wrote it on her chart) that she did NOT require prophylactic antibiotics for the type of heart murmur she has. After the surgery the nurse read us the long list of drugs that had been given to Roslin, which included a WHOPPING dose of antibiotics. Didn't the chart say antibiotics were not required? Yes, but the anesthetist on call that day disregarded this information. Aside from being very angry, we had to be careful over the next few weeks to prevent a yeast infection.

"I also didn't want Roslin to be x-rayed, which is routinely done before surgery. The dentist said that if he didn't he wouldn't be able to place a claim for her, and I would have to pay for the entire surgery out of pocket, something I couldn't afford.

"Then a few months after the surgery, she must have bumped one of her newly-capped front teeth, because an hour or so after brushing them one morning one of them was missing. The tooth beside that one is now loose and it looks like she will lose that one eventually too. And the composite filling in one of the molars recently fell out, leaving a blackened surface.

"Will I do it again? Subject her to another anesthetic to have these teeth repaired (which is what the dentist is recommending)? No. For health, speech and cosmetic reasons the first surgery seemed the right thing to do.

"But I've been giving new thought to our teeth. The dentists I had seen (for second, third and fourth opinions, who all said the same thing) prior to Roslin's surgery scared me into believing that if I didn't have the surgery done she would surely develop an abscess. I don't believe that anymore, especially with careful attention being paid to the foods she eats and careful brushing and rinsing after meals. Cosmetically, I would prefer her to have all her front teeth, but know these will eventually grow in again. Her upper molar needs attention, I believe, but right now I'm reluctant to traumatize her again.

"I hope some of this helps. I know that a lot of my fears are borne out of my experience with Grace, and don't wish to pass them on. But perhaps some of the things I mentioned will help you know what you might expect with your son's surgery.

"I can also tell you how my daughter dealt with another recent traumatic experience, which may or may not help your son.

"Last November she had a blood test- her finger was poked with a lancet while I held her. She was terrified and thrashed about, and I was in that awful parental place of thinking I was doing a responsible thing for my daughter while at the same time wanting to scoop her out of there and love, love, love her.

"Since she was able to use words at that time and her level of understanding was that much greater, I carefully approached the subject sometime afterwards, feeling that if she could process the experience the memory of it would not reside in her body and continue causing her trauma down the line.

"The first time I mentioned 'blood test' and 'hospital' (which is where she had the blood test) she responded with fear and I didn't say another word. Some time later, I gently broached the subject again, to see where she was at. Still, fear; she definitely did not want to hear another word. As the weeks went by, she became a little more comfortable with the mention of these words, but no elaborations.

"My daughter has a doctor kit which she loves to play with. Although she steered clear of the syringe after this event, I could see that she was slowly becoming more willing to look at it. And then this week, several months after her blood test and almost daily play with her kit (her choice), she actually 'gave a poke' with the 'blood lancet', to both me and some inanimate objects! 'We' all duly cried out in pain and asked for a hug, which she was quick to offer. She still won't read or look at the pictures about the blood lancet in her library books, but I now believe that her complete 'processing' of this event is only a matter of time.

"I have observed this process with utter fascination. My prayer is that as we continue with this role playing her body will no longer need to hold on to the trauma it experienced. I wish I had done something as creative with her first hospital experience (after she had oral surgery)." -Sincerely, Pegan

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